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Patient involvement

The Network is supporting members interested in understanding patient and public thinking on organ on a chip technology  - helping to ensure that technology development and application responds to the needs and concerns patients and the wider society.

If you are actively involving patients in your work on organ-on-a-chip technology - please let us know at network@organonachip.org.uk, as we are very keen to increase our knowledge in this area. You can also share information with other Network members of the patient involvement special interest group forum page.

 

Patient involvement special interest group

Network member, Blerina Ahmetaj-Shala from Imperial College London has set up a special interest group on organ-on-a-chip patient involvement.

Blerina is passionate about involving patients:

‘The whole concept of OOAC technology exists so that it can ultimately help transform the lives of people suffering from a range of diseases – including cardiovascular, respiratory and cancer.

‘Therefore – the patient perspective is critical. Their life experience can help us better understand their view of the opportunities and concerns of this emerging technology; particularly in terms of their own healthcare and for society as a whole. Ultimately by engaging with patients, we aim to find out how best to involve patients in the development and application of this technology; increase public awareness and ensure its potential uses in future healthcare meet the needs of patients.’

On 24 June, Blerina and Network administrator Julia Coffey, took part in an organ-on-a-chip technology discussion with a research focused, respiratory patient advisory group based at Royal Brompton.

The aim of the meeting was to:

  • better understand the patient perspective - informing academics and industrialists working in the field on possible expectations, advantages and any concerns relating to this technology from a patient viewpoint.
  • raise patient awareness

The patient advisors were very interested in the technology; suggesting extremely helpful improvements to our OOAC website from a public perspective as well as how to increase patient awareness.

Importantly - the discussion also generated a number insightful questions on organ-on-a-chip technology of interest to patients and public.

Next steps for PPI?

We now plan to involve Network members in compiling answers - you can start helping us by viewing the questions and posting answers on our OOAC patient involvement forum page

We are also planning to seek feedback from patient groups that might be less research aware such as the BHF patient heart support groups, as well as organise an OOACT network patient event in the near future.

[posted: 9 August 2019]

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